Design of a Mobile-Based Systemic Lupus Erythematosus (SLE) Self-Management Application

Diva Ivani Arista Pangastuti, Aridhanyati Arifin

Abstract


Lupus is a chronic autoimmune disease characterized by unpredictable cycles of remission and flare-ups, making regular monitoring of symptoms essential. However, many people with lupus experience challenges in consistently tracking their health due to brain fog, fatigue, and the wide variation of symptoms, which often leads to missed medication schedules and incomplete symptom records. This study aims to develop a mobile self-management application designed to help individuals with lupus monitor their health, manage their medications, and increase awareness of self-care activities. The development process employed the DMAIC (Define–Measure–Analyze–Improve–Control) framework, with the initial application prototype created using Figma. The prototype was tested with 22 respondents who are people with lupus (ODAPUS) to gather user feedback. The results indicate that users evaluated the application positively and found it beneficial for daily health management. Nevertheless, they recommended simplifying the interface and user flow to enhance usability. These insights will guide further improvements in the next stage of development.

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References


Lahita, R. G. (2021). Systemic Lupus Erythematosus. Academic Press.

Dantas, L. O., Weber, S., Osani, M. C., Bannuru, R. R., McAlindon, T. E., & Kasturi, S. (2020). Mobile health technologies for the management of systemic lupus erythematosus: a systematic review. Lupus, 29(2), 144–156.

Moulaei, K., Rajaei, E., Ahmadian, L., & Khajouei, R. (2022). Investigating the role of health information technology in the control and management of Systemic Lupus Erythematosus (SLE): a systematic review. BMC Medical Informatics and Decision Making, 22(1).

Ramasamy, A., Dugyala, P., & Mohan, C. (2022). Mobile health apps for systemic lupus erythematosus and lupus nephritis: a critical appraisal. Arthritis Research & Therapy, 24(1).

Guardino, K. et al. (2024). Meeting report: patient and caregiver recommendations for a mobile health application for paediatric systemic lupus erythematosus. Lupus Science & Medicine, 11(2), e001305.

Canal-Pérez, A. et al. (2024). E-Health Interventions to Improve Health Outcomes in Patients with Systemic Lupus Erythematosus: A Systematic Review. Healthcare, 12(16), 1603.

Bell, K. et al. (2021). Patient‐Reported Outcome Information Collected from Lupus Patients Using a Mobile Application: Compliance and Validation. ACR Open Rheumatology, 4(2), 99–109.

Leung, J. et al. (2021). Development of a digital toolkit to improve quality of life of patients with systemic lupus erythematosus. Digital Health, 7.

MacIver, A., Hollinger, H., & Carolan, C. (2021). Tele-health interventions to support self-management in adults with rheumatoid arthritis: a systematic review. Rheumatology International, 41(8), 1399–1418.

Marques, A. et al. (2021). Effectiveness of self-management interventions in inflammatory arthritis: a systematic review. RMD Open, 7(2), e001647.

Park, M., Lee, J., Cheon, J. H., Yoon, N., Yu, J., & Nam, H. (2025). User-needs based app for patients with inflammatory bowel disease: development and usability study. BMC Health Services Research, 25(1).

He, X., Bian, J., Berlinski, A., Guo, Y., Simmons, A. L., Marshall, S. A., Greene, C. J., Brown, R. H., Turner, J., & Perry, T. T. (2025). Mobile Health App for Adolescent Asthma Self-Management: Development and Usability Study of the Pulmonary Education and Knowledge Mobile Asthma Action Plan. JMIR Formative Research, 9, e64212.

Ristow, N., Wilke, A., Skudlik, C., John, S. M., & Ludewig, M. (2025). User experience of and adherence to a smartphone app to maintain behavior change and Self-Management in patients with Work-Related skin diseases: Multistep, Single-Arm Feasibility study. JMIR Formative Research, 9, e66791.

Roberts, K., Beckenkamp, P., Comachio, J., Castrillon, C. M., Silveira, A. M. C., Ho, E., Comis, J., Jensen, C., Gordon, C., & Ferreira, P. (2025). The design process and development of MySleepSolutions - A sleep module for a lifestyle self-management app for low back pain. Health Informatics Journal, 31(2). https://doi.org/10.1177/14604582251340548

Tveter, A. T., Varsi, C., Maarnes, M. K., Pedersen, S. J., Christensen, B. S., Blanck, T. B., Nyheim, S. B., Pelle, T., & Kjeken, I. (2024). Development of the Happy Hands Self-Management App for People with Hand Osteoarthritis: Feasibility Study. JMIR Formative Research, 8, e59016.

Pemerintah Republik Indonesia. (2025). Peraturan Pemerintah Nomor 17 Tahun 2025 tentang Penetapan Usia Dewasa dan Perlindungan Pengguna Digital.. Berlin, Germany: Springer, 1989, vol. 61.

Raghunath S, Glikmann-Johnston Y, Hanly JG, Morand EF, Stout JC, Hoi A. (2022). Cognitive dysfunction in systemic lupus erythematosus: how do we advance our understanding? Lancet Rheumatol. 4(4):e293-e302. doi: 10.1016/S2665-9913(21)00331-3. Epub 2022 Jan 19. PMID: 38288924.

Mok CC, Lau CS. (2003). Pathogenesis of systemic lupus erythematosus. J Clin Pathol. Jul;56(7):481-90. doi: 10.1136/jcp.56.7.481. PMID: 12835292; PMCID: PMC1769989.

Costedoat-Chalumeau N, Pouchot J, Guettrot-Imbert G, Le Guern V, Leroux G, Marra D, Morel N, Piette JC. (2013). Adherence to treatment in systemic lupus erythematosus patients. Best Pract Res Clin Rheumatol. 27(3):329-40. doi: 10.1016/j.berh.2013.07.001. PMID: 24238690.

Antony, J., Snee, R., Hoerl, R. (2017). Lean Six Sigma : yesterday, today and tomorrow. International Journal of Quality & Reliability Management, 34(4), 1073-1093.




DOI: https://doi.org/10.29040/ijcis.v6i4.260

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